| Send us your words |
| About Hell's Kitchen |
July 9, 2005
We’ve had a great couple of days here. No finger stick in clinic on Thursday, plus Hazen’s counts met the gold standard: discontinue GCSF shot, and no transfusion. Nurse Linda gave us the okay to vamoose until Tuesday with the option to come in on Monday if Hazen looks like he needs a tune up.
We made a quick pit stop to Talbot’s Kids, in our never-ending search for affordable soft cotton clothes. Hazen’s skin is still a bit hypersensitive, so he won’t endure most of his old clothes. We found a couple of things he liked, on sale. Then we ventured off to Central Park. Well, before we actually got to Central Park we stopped for: a donut, a cupcake, a shortbread cookie and some Veggie Booty. We sort of eat our way across Manhattan, literally. I’ve become the human garbage disposal. Hazen takes a few bites, then says, “Here you go mom, you can finish it,?and boy, can I.
But I’ve got to support the urge to eat, whatever the quantity. Hazen might end up a chef. He’s always imagining flavors and textures together. Plus he has impeccable taste. His favorite ice cream is Haagen Dasz, his favorite cookies are Fauchon’s sugar cookies (or homemade Butterscotchies), and Eli’s shortbread iced cookies. His favorite cupcake is from Magnolia. His favorite donut is Cupcake Caf? This all coming from the kid who saw his first concert at Carnegie Hall at 3 months. He’s quite debonair, our little mugsy.
This Friday has been sooo relaxing. A far cry from our stints in the ICU, etc. Actually, Hazen brought up the ICU today. He said that it’s his favorite hospital because they have the Disney Channel. He must have failed to remember that he had a tube down his throat while he was watching it. Thank goodness for selective memory. I pray to God above that our days to come bring complete healing, Intensive Care Unit free. For a second I regretted not having cable. Is PBS really that bad?
Thank goodness we went to visit Aunt C.C. today. She and her boyfriend George have the Disney Channel. And Noggin, Nick Jr., Cartoon Network, and more. He watched TV till his eyes crossed and even did yoga during a commercial break. He loves C.C. and was happy to see her and the Disney channel. We’re getting scans the week of July 18th, still working out scheduling anesthesia for the MRI of his liver. Hazen can do most anything without anesthesia, but I heard from most adults that the noise of the MRI is mind bending. So, we’ll take it from there. From there on out it’s either more chemo, then on to radiation and antibodies, or another surgery for the liver. I pray to God it’s the former. If it is, we may just have to get cable.
PLEASE SIGN OUR GUESTBOOK and see lots of GREAT PICTURES by visiting the following site while we update Hazen’s own site. http://www.caringbridge.org/visit/hazen
Love and Laughter, Suz , Scott, Haz
June 10, 2005
Another Pit Sto
We’ve had a great couple of days here. No finger stick in clinic on Thursday, plus Hazen’s counts met the gold standard: discontinue GCSF shot, and no transfusion. Nurse Linda gave us the okay to vamoose until Tuesday with the option to come in on Monday if Hazen looks like he needs a tune up.
We made a quick pit stop to Talbot’s Kids, in our never-ending search for affordable soft cotton clothes. Hazen’s skin is still a bit hypersensitive, so he won’t endure most of his old clothes. We found a couple of things he liked, on sale. Then we ventured off to Central Park. Well, before we actually got to Central Park we stopped for: a donut, a cupcake, a shortbread cookie and some Veggie Booty. We sort of eat our way across Manhattan, literally. I’ve become the human garbage disposal. Hazen takes a few bites, then says, “Here you go mom, you can finish it,?and boy, can I.
But I’ve got to support the urge to eat, whatever the quantity. Hazen might end up a chef. He’s always imagining flavors and textures together. Plus he has impeccable taste. His favorite ice cream is Haagen Dasz, his favorite cookies are Fauchon’s sugar cookies (or homemade Butterscotchies), and Eli’s shortbread iced cookies. His favorite cupcake is from Magnolia. His favorite donut is Cupcake Caf? This all coming from the kid who saw his first concert at Carnegie Hall at 3 months. He’s quite debonair, our little mugsy.
This Friday has been sooo relaxing. A far cry from our stints in the ICU, etc. Actually, Hazen brought up the ICU today. He said that it’s his favorite hospital because they have the Disney Channel. He must have failed to remember that he had a tube down his throat while he was watching it. Thank goodness for selective memory. I pray to God above that our days to come bring complete healing, Intensive Care Unit free. For a second I regretted not having cable. Is PBS really that bad?
Thank goodness we went to visit Aunt C.C. today. She and her boyfriend George have the Disney Channel. And Noggin, Nick Jr., Cartoon Network, and more. He watched TV till his eyes crossed and even did yoga during a commercial break. He loves C.C. and was happy to see her and the Disney channel. We’re getting scans the week of July 18th, still working out scheduling anesthesia for the MRI of his liver. Hazen can do most anything without anesthesia, but I heard from most adults that the noise of the MRI is mind bending. So, we’ll take it from there. From there on out it’s either more chemo, then on to radiation and antibodies, or another surgery for the liver. I pray to God it’s the former. If it is, we may just have to get cable.
PLEASE SIGN OUR GUESTBOOK and see lots of GREAT PICTURES by visiting the following site while we update Hazen’s own site. http://www.caringbridge.org/visit/hazen
Love and Laughter, Suz , Scott, Haz
June 10, 2005
Another Pit Sto